Jana M. Gamble
3/22/2013
From Passive to Passion
Many people go through life without caring about what they intake in their bodies such as soda, beer, candy, and trans fats to name a few let alone thinking too much on what will happen to this shell we call a body after their time on earth is up and they pass on to a new beginning. Although very unfortunate, death is not a subject that families normally discuss over dinner and is often a very difficult situation to open up about planning for prior to dealing with an actual occurrence. Fifteen years ago I was at the license bureau in Moberly, MO where I grew up and after passing my driver’s exam was asked if I wanted to be an Organ Donor and without hesitation I replied yes. While I waited for my first shiny new license with the perfect picture on it, I wasn’t fazed in any way by the responses of others being helped that were asked that very same question. Now when I walk in and wait in the long, slow moving line at the license bureau my heart aches and my ears feel as if they are bleeding with sadness from the responses to the Organ Donor question that when answered “no” sends a shrill down my spine like the times that someone has ran their nails down the chalkboard or their teeth across a fork.
My life has completely changed after having my first hand experiences with the process of becoming a Living Organ Donor. Although being an Organ Donor was never the “question” the reasons why I wanted to be a donor have changed. This process birthed a great passion for encouraging others to be a both Living Donors and to donate their organs and tissue following their death. I now challenge my community to live healthier to lessen the health disparities, especially those associated with minorities, to enable them to be potentially considered as an Organ Donor. Families should openly discuss their opinions about being an Organ at times when everyone is healthy and not wait for a tragic accident or death of a loved one occurs. My new found passion for being an Organ Donor encourages our community to #Live2Give seeing that through the gift of life both donor and recipients will live on because of the donor’s selflessness and generosity.
The decision to donate life for many people is blocked by the various myths that have been wrongly passed throughout society and down from generations before us. For me there were no myths in the way of my choice to become an Organ Donor at the age of 16 while I was on cloud nine from getting my license and being able to drive by myself for the first time. My decision was like second nature, and I never even questioned how the donation procedure would be done or thought about what my Catholic faith’s view on this subject I just committed, which meant I was still an uninformed donor on a list. Growing up, either I wasn’t informed about donation and transplant process because there wasn’t enough awareness in the small town that I grew up in, or because after our family experienced losses there was never a discussion about whether the ones that passed were Organ Donors. Death was a difficult subject to discuss, but I do appreciate my mother always communicating to us that she desires to donate her organs, be cremated, her ashes spread on the sand near the ocean and for each of her children to keep an urn of some of her ashes. My mother’s willingness to share this with her children outside of a traumatic experience will allow her children to have peace about their decisions when the inevitable time in their life occurs which many people don’t choose to do.
Before I became so well acquainted with the organ donor process I never even thought once about these myths such as not committing to donate due to religious beliefs, the thought that you can’t go to heaven unless your whole in body, thinking that if something fatal is occurring that the doctors will not preserve your life just to be able to utilize your organs and tissue for someone that is on the donor list. Now I know that these are exactly what I stated before- they are myths with facts and statistics to back the truth behind them up. For example, the facts behind the religious questioning pertaining to organ donation is that the process is actually accepted and consistent with most religions such as Catholicism, Protestantism, Islam and most of the branches of Judaism. The website OrganDonor.gov provides resources and information to educate individuals about this and other myths like I previously listed.
Myths and belief systems come somewhat from outward influences in our lives. The moments that connected me with the passion for Organ Donor Awareness began over 7 years ago. Sitting crisscrossed on the plush carpeted floor with her legs curled up at her side in a pretty little white spring dress with blue anchors on it, a young woman sat in complete distress as she share her needs for prayer at the Women of Excellence prayer meeting that I was attending. I had never really met this woman before that I could remember, but very well could have waved hello in the passing inside our giant dome shaped church that has over 7,000 members. The very moment she spoke I know God gave me both the great privilege and responsibility to befriend her- not just for a season, but for a lifetime. This is where the reasons I had to become an Organ Donor would forever change.
The young woman, a mother of 5 uniquely beautiful children was in a desolate marriage to a man that was battling his decision to move on with his life alone and come out of the closet, introduced herself to me as Aminah. Aminah and I, as well as our combined 7 children instantly clicked beginning friendships amongst one another that nothing could ever separate. A few years after this beautiful friendship was established Aminah expressed to me that her father was in kidney failure and was preparing to be on the Organ Donor List and with that he was already trying to recruit potential donors. One day while riding in Aminah’s vehicle together, her dad called and Aminah answered it on speaker phone. Al, her dad, told me about his need for a kidney transplant confirming what his daughter had shared with me and then proceeded to say, “So I might need your kidney. Would you be willing to donate?” Even though his voice inflection gave off a humorous vibe there was no doubt in any of our minds that this was not a joking matter. Without hesitation I told him that I was completely interested and would do whatever I could to help for my best friend’s dad. For over a year every time I would see Al or be around him he would ask “are you still going to give Daddoo your kidney?” in a joking matter and nonchalantly would say “of course dad!”
In 2011, Aminah’s dad, Al going to dialysis 3 days a week became more concerned about his need for a kidney transplant due to his continued kidney failure that had left him at this point with 5% function in one and 8% function in the other kidney. Al and I started meeting about once a week to have lunch and he would educate me on the process of becoming a Living Organ Donor. The Nashville Veteran’s Administration (VA) Hospital where he chose to have his transplant because of their success rate, provided Al with literature and information to share with prospective donors and he shared all of this with me. Our father-daughter friendship grew over these few months while he was educating me about the donor process as well as sharing life experiences especially the war stories from Vietnam and the affects that Agent Orange had on himself and so many other Veterans.
Finally Al was on the list to receive a kidney transplant and his wife and 4 of their 5 children went to be tested to see if they would be a match with the conclusion that none of them were. During this time my best friend and his oldest daughter Aminah was going through a difficult divorce and was physically and emotionally unable to start the testing process- this is when Al called me. He called thanking me for the friendship that we had nurtured and for considering being a donor for him; giving me complete freedom to make the choice of my own but asked if I was ready to move forward. I was given the name and number of the Nashville VA contact and immediately called to see if I could be a possible kidney donor for Aminah’s dad. After one short call, faxing my blood donor card and license to the Nashville VA two hours later I received a call back informing me that they wanted to fly me down to their hospital less than a week later on September 11th, 2011 to find out if I would be a match for Al and donate my kidney.
Never in the 29 years of my life had I it even crossed my mind that I would give a piece of myself to another human being while I was still alive besides the pieces of my heart I gave away through relationships but nothing in the literal sense. I was a single mother of two children, but I had just parted ways from my job at the time, therefore my schedule was completely open to begin this journey. The greatest peace was upon me during this entire time- I knew that I made the right choice and knew in my heart that everything was going to work out perfectly just as it was destined to. After four trips back and forth to Nashville and a laundry list of testing the Transplant team was informing me that I was a match for Al. There was deliberation that took place over a month’s time and the final decision was made that I would not be allowed to donate because I carry the sickle cell trait.
Shortly after our heartbreaking news Aminah decided to step up and was tested as well to donate to her dad. She was a match and on July 18th, 2012 she, her mom, dad and I went through the experience of a Living Organ Transplant. This experience changed my life! It was the turning point that caused my passiveness about Organ Donation to a passion that I share with my best friend. After going through this beautiful emotional voyage Aminah and I started a charity called Living Sweet with a mission of “Igniting the change that inspires our communities to live healthier, give more and donate life.”